Doctors Told The Parents Of A Baby Born With An Adult-Sized Head She Wouldn’t Survive
When Ruth Rankin went into the clinic for her 20-week ultrasound, she was told that her daughter wouldn’t survive very long after birth. Doctors suggested Ruth to terminate the pregnancy when they found that her baby daughter would be born with a rare brain disorder that causes an abnormal growth in the cranium.
Lydia-Joy was the baby who wasn’t supposed to have been able to survive her birth. She is now a walking 4-year-old miracle!
Lydia suffers from Alobar Holoprosencephaly, which is a condition in which the 2 front lobes of the human brain do not fully separate during development. The effect being that whoever has the condition will not be able to walk or talk.
“It has been a rollercoaster,” says Ruth Rankin. “We’ve been told three times in her life she was going to die but she’s a strong ox. She inspires all of us and her strength keeps us alive. She is our miracle.”
Lydia underwent her first operation to remove fluid from her brain at only 6 weeks old, doctors were not expecting a successful operation.
By the time she reached the age of 4, Lydia had undergone over 40 operations.
“Since she was born, we’ve been constantly in and out of hospital with stays of two or three weeks every time she’s had an operation. With each operation, it doesn’t get easier. The anticipation is agonizing. As a mother I can’t begin to tell you what it’s like”
Through all the hardships she has faced at such a young age, her personality always shines through and inspires those around her to live their lives to the fullest.
Her parents have quit their jobs to be full-time caregivers for their beautiful daughter.
“Every day Paul and I wake up with Lydia we think, ‘Yes!’ We might not get her to five years old, we might not get her to six, but we live for now and take each day as it comes,”